Purple Day® Every Day Blog

Real people with epilepsy. Real families. Real stories. Real strength. Real hope.

The Purple Day® Every Day blog consists of a growing network of people with epilepsy, their caregivers and family members, other advocates and even some health care providers (HCPs) within the epilepsy community committed to helping us raise awareness each and every day of the year.
 
Want to submit your story? Click here to sign up to be a guest blogger!

 

A Day in the Life of a Caregiver to a Child with Dravet Syndrome
by Alen Kuldija
Author: Adel Bounif My name is Adel Bounif. My daughter has a severe and genetic form of epilepsy, called Dravet Syndrome. In the morning I have to wake up my
Epilepsy May Affect Her Life, But It Doesn't Determine How She Lives It!
by Alen Kuldija
Author: Robyn White Every four minutes someone somewhere in the United States is diagnosed with epilepsy, and this is the story of how I became 1 in 26. My name
'I Am Epileptic' Support Group Founder Wants YOU To Join!
by Alen Kuldija
Author: Ely Ki I am an admin for @iamepileptic on Facebook. It all started when I had my first seizure on March 9, 2015. This was almost 6 years ago.
Absence Seizures Couldn't Hold Miad Back
by Alen Kuldija
Author: Miad Bavi translated and prepared by Leila Fakour My name is Miad and I am 33 from Iran. When I was 8 I had my first seizure.  Though I
Each Breath Can Be Her Last - So She Lives For The Moments, Memories and Never Stops Asking Why
by Alen Kuldija
Author: Caitlin Bynum     My name is Caitlin & I have epilepsy.   I was diagnosed with petit mal absence seizures at age seven. My seizures had gone two
[VIDEO] Let's Get Physical! New Data on Physical Activity & Epilepsy
by Alen Kuldija
Coach Caprice O'Bryant, Purple Day® Every Day Ambassador, CEO of Excuse Free Fitness and author of Prayers Up, Weight Down sat down with Purple Day® Every Day's Assistant Director Jim
The Sweetest Way to Celebrate Thanksgiving This Year
by Alen Kuldija
If you're looking for a way to sweeten up your Thanksgiving festivities this year, consider this: Purple Day® Every Day recently re-launched 'The Great Purple Cupcake Project' offering the perfect
Not Even Status Epilepticus Can Keep Iliya from Learning About His Brain
by Alen Kuldija
Author: Leila Fakour, mother of Iliya Fakour, Purple Day® Every Day Ambassador Iliya is 13. He was diagnosed with epilepsy when he was 4 years old, though old his seizures
There's Something About Mary
by Alen Kuldija
Author: Amy Denis, Guest Contributor Mary is an 11 year old twin and lives in the beautiful Adirondack Mountains in upstate New York. She loves to play Fortnite, go fishing
I’m Maria – and I’m blogging about epilepsy with Purple Day Every Day
by Alen Kuldija
Author: Maria Martinez, Purple Day® Every Day Ambassador I’m Maria. I’m fifteen years old and I have epilepsy.  My epilepsy story is something that made me stronger. And for that
How YOU Can Get Involved as a Purple Day® Every Day Ambassador
by Alen Kuldija
Author: Alyssa Holmes, Purple Day® Every Day Ambassador Purple day, every day you say? What is this some new challenge or trend? No! It’s nowhere close to that.   Listen up,
Official Launch of the Purple Day® Every Day Blog – Get Involved!
by Alen Kuldija
As we kick off Epilepsy Awareness Month, the Purple Day® Every Day team wanted to take a moment to share that we have officially kicked off our Purple Day® Every
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