Purple Day® Every Day Blog

Real people with epilepsy. Real families. Real stories. Real strength. Real hope.

The Purple Day® Every Day blog consists of a growing network of people with epilepsy, their caregivers and family members, other advocates and even some health care providers (HCPs) within the epilepsy community committed to helping us raise awareness each and every day of the year.
 
Want to submit your story? Click here to sign up to be a guest blogger!

FiveSibes™ #LiveGibStrong/#Paws4Purple Highlights Purple Day®

by Lena

FiveSibes™ #LiveGibStrong/#Paws4Purple Highlights Purple Day® With TWO Special Events For You to Participate In! It's that time of year ~ Purple Day® for Epilepsy, where we here at FiveSibes #LiveGibStrong

Adventures and Advocacy

by Lena

Hi Everyone! I know it's been a while between blogs again, but my summer and fall have both been jam packed with traveling adventures and Advocacy for Epilepsy. This has

The Canine Epilepsy Summit

by Lena

  Have you heard about our the #YourPetsBestLife Health Summits?   VetVine and North Carolina State University Canine Epilepsy Research Laboratory have joined together to host webinars that will inspire

Tough Times & Fun Things!

by Lena

Wow, I can’t believe it’s been almost 6 months since I’ve written just a regular “what’s been up with me” blog. However, I assure you, those months have been quite

A Clear Choice: Why We Advocated for Our Son to Have an “Elective” Surgery During the COVID-19 Pandemic

by Lena

  For my son Ethan, “elective surgery” is a misnomer. For Ethan, the word “elective” doesn’t mean optional. It doesn’t mean his surgery isn’t urgent or necessary, and it certainly

Could uncontrolled seizures be a sign of a more specific condition?

by Lena

The terms "refractory," "intractable," or "drug-resistant" seizures could be a clue to an underlying condition such as Lennox-Gastaut syndrome (LGS), Dravet syndrome, or tuberous sclerosis complex (TSC). For those experiencing

Father, Actor, Epilepsy Advocate – Greg Grunberg hosts “The Care Giver Series”

by Lena

Greg Grunberg is an actor, producer, and comic book author, but if you asked him, he would tell you the roles closest to his heart are father, caregiver, and advocate.

Decoding Clusters

by Lena

What are they?

Mental Health Awareness Month

by Lena

Hello everyone! I hope you are all doing well! I know it’s been a while since my last blog. We have had a lot going on in my family, and

Celebrating Strength on Purple Day®

by Alen Kuldija

Just last week, hundreds of people living with epilepsy and their supporters came together to raise awareness and celebrate the strength of the community at this year’s Purple Day Around

The Importance of Epilepsy Education

by Alen Kuldija

The strength of the epilepsy community is unbeatable, thanks to resilient patients and dutiful caregivers who are constantly searching for new ways to achieve seizure freedom. This year, Eisai, Inc

Happy New Year!

by Alen Kuldija

It's been a few months since my last blog. First, I want to sincerely thank the Anita Kaufman Foundation for all that they do for the Epilepsy community. They have

1 2 3 … 79 Next »