Purple Day® Every Day Blog

Real people with epilepsy. Real families. Real stories. Real strength. Real hope.

The Purple Day® Every Day blog consists of a growing network of people with epilepsy, their caregivers and family members, other advocates and even some health care providers (HCPs) within the epilepsy community committed to helping us raise awareness each and every day of the year.
 
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Did You Know Solar & Lunar Eclipses, Phases of the Moon, Solar Flares, and Even Storms Could Trigger Seizures in...

by Lena

It’s November and that means it is Epilepsy Awareness Month. I’ll be talking here about seizures related to Canine Epilepsy. With the recent October’s Great American Eclipse (Annular Solar Eclipse)

Overcoming Anxiety and Depression Through Advocacy

by Lena

This has been a very difficult summer for me. It began with my Dad unexpectedly needing to have open heart surgery and that was a very scary experience for my

Employee Spotlight: Debbie Smith’s Journey on Moving the Conversation Forward in Epilepsy and Health Equity

by Alen Kuldija

When we think about our purpose, people, and science – our people are a core component of how we deliver moments that matter for people living with severe diseases.

VNS Therapy™ changed my daughter’s life. I will always be grateful for VNS Therapy.

by Lena

VNS Therapy™ changed my daughter’s life. I will always be grateful for VNS Therapy. In 2015, my family’s lives were falling apart. My daughter, Vivien, was living with life-threatening, uncontrolled

Being Present In The Moment

by Lena

Wow, I really can’t believe it’s been November since I’ve last posted here on the blog. I waited because I felt like I didn’t really have that much to share,

FiveSibes™ #LiveGibStrong/#Paws4Purple Highlights Purple Day®

by Lena

FiveSibes™ #LiveGibStrong/#Paws4Purple Highlights Purple Day® With TWO Special Events For You to Participate In! It's that time of year ~ Purple Day® for Epilepsy, where we here at FiveSibes #LiveGibStrong

Adventures and Advocacy

by Lena

Hi Everyone! I know it's been a while between blogs again, but my summer and fall have both been jam packed with traveling adventures and Advocacy for Epilepsy. This has

The Canine Epilepsy Summit

by Lena

  Have you heard about our the #YourPetsBestLife Health Summits?   VetVine and North Carolina State University Canine Epilepsy Research Laboratory have joined together to host webinars that will inspire

Tough Times & Fun Things!

by Lena

Wow, I can’t believe it’s been almost 6 months since I’ve written just a regular “what’s been up with me” blog. However, I assure you, those months have been quite

A Clear Choice: Why We Advocated for Our Son to Have an “Elective” Surgery During the COVID-19 Pandemic

by Lena

  For my son Ethan, “elective surgery” is a misnomer. For Ethan, the word “elective” doesn’t mean optional. It doesn’t mean his surgery isn’t urgent or necessary, and it certainly

Could uncontrolled seizures be a sign of a more specific condition?

by Lena

The terms "refractory," "intractable," or "drug-resistant" seizures could be a clue to an underlying condition such as Lennox-Gastaut syndrome (LGS), Dravet syndrome, or tuberous sclerosis complex (TSC). For those experiencing

Father, Actor, Epilepsy Advocate – Greg Grunberg hosts “The Care Giver Series”

by Lena

Greg Grunberg is an actor, producer, and comic book author, but if you asked him, he would tell you the roles closest to his heart are father, caregiver, and advocate.

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