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Seventh Annual Purple Day® Expo

STXBP1 Foundation

Science + Love = Cure
Address

PO Box 1148
Holly Springs, NC 27540
United States

Contact

Jackie Steinberg

jackie.steinberg@stxbp1disorders.org

317-437-3247

The STXBP1 Foundation is a parent-led 501(c)3 non-profit dedicated to raising awareness and finding a cure for STXBP1-Related Disorder, a rare neurodevelopmental condition and genetic epilepsy. We work with families, physicians, scientists, and pharmaceutical innovators. The STXBP1 Foundation was created by a group of dedicated parents and our nonprofit is focused on advocacy, driving research, and providing our families and their physicians with information and resources.

© Copyright 2026 The Anita Kaufmann Foundation. All rights reserved.