STXBP1 Foundation

Science + Love = Cure

PO Box 1148
Holly Springs, NC 27540
United States


Jacqueline Steinberg


The STXBP1 Foundation is a parent-led advocacy non-profit dedicated to raising awareness and finding a cure for STXBP1-Related Disorder, a rare neurodevelopmental condition and genetic epilepsy. Our nonprofit is focused on advocacy, driving research, and providing our families and their physicians with information and resources. We work with families, physicians, scientists, and pharmaceutical innovators.

© Copyright 2024 The Anita Kaufmann Foundation. All rights reserved.