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Seventh Annual Purple Day® Expo

Foundation for Hao-Fountain Syndrome

Providing a future of possibilities for those diagnosed with Hao-Fountain Syndrome.
Address

11 Innkeepers Lane
Falmouth, Maine 04105
United States

Contact

Becky Raatz

becky@usp7.org

843 991 9650

The Foundation for Hao-Fountain Syndrome is a nonprofit organization dedicated to supporting individuals and families affected by Hao-Fountain syndrome (USP7-related disorders), a rare genetic condition often associated with epilepsy, developmental delays, and complex neurological needs.

The Foundation works to raise awareness, connect families, and accelerate research by funding scientific studies, supporting data collection through patient registries, and amplifying the lived experiences of those impacted.

© Copyright 2026 The Anita Kaufmann Foundation. All rights reserved.