Diana Khurtsiya

Last year (2015) for the first time in my life, I faced with epilepsy. It was a moment when my 16-year-old son Denis experienced a generalized seizure.  For our family it became a starting point. I heard the diagnosis epilepsy for the first time. Various definitions and notions related to epilepsy interfered our lives. That moment I realized that there is no way to give up and hoping for the best can  endure all the challenges. We were all changed.

Today, Denis is 17th, he has a big future ahead and I wish him and all the people with epilepsy to face less ignorance, stereotypes and myths on epilepsy. It is very important that society should understand the essence of the epilepsy, how to help if needed. The live of my son and lives of many people  depends on this.

As I start searching, I found that I am not alone with this problem. There are people with similar experience. I met a couple of people from so-called patient community of people with epilepsy called EPIUP. At the meetings I could easily observe the discussions experience exchange of people with epilepsy, participate, express concerns and opinion. What is important I can participate in the initiatives related to epilepsy awareness.

At the meetings I could easily observe the discussions, experience exchange of people with epilepsy, participate, express concerns and opinion. What is important I can participate in the initiatives related to epilepsy awareness.

People in our micro community can explore activities and common spheres of interests. Our main goal is to live a better and a higher quality of life, live a life like we always wanted with no fear. We planned to celebrate Purple Day with some events and will do the Purple Day Every day. It will be our contribution to the local epilepsy awareness campaign. We are going to make interesting photo session with symbols of the Purple Day. We will walk in down streets of Kyiv and will shoot a video asking people what is epilepsy, first aid during a seizure, is life with seizures simple. Number of interviews with patients and relatives… We can start work on more initiatives and no matter what project we are working on we are united and empowered to change the life for better.

 

Age Diagnosed: 1
Location: Ukraine
Website: http://www.epiup.com.ua

Hobbies: music, reading books, walking the dog

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