Schedule of Events

2020 SCHEDULE OF EVENTS


9 am Registration


9:30 am – Noon  Our Morning Events

A Morning with Mickey and Minnie & More! – Conversations & Contests – Panel Discussion

Everything you ever wanted to know about a teen with epilepsy but were afraid to ask!

Dr. Ronald Davis, a Pediatric Neurologist at the Pediatric Epilepsy Center of Central Florida, will lead a panel of young people living with epilepsy and seizures. Purple Day founder Cassidy Megan will join the group to talk about living with epilepsy as a teenager, what the barriers are, and share their strategies for success.

Get Your Purple On! – Earn a chance to win a $250 prize by wearing your most outrageous purple outfit.

Gotta Be In It To Win It! – Pick up your ticket to win a $250 prize just by sharing the experience of watching Spaceship Earth turn purple in the evening.

Thanks to our presenting sponsor Eisai, we will have for you at check-in a Purple Cap and kids “Purple Hero Cape” for you!


Noon – 5 pm


 EXPO & INFORMATION SESSIONS

Learn from dozens of experts in the epilepsy field as they share insights and information, along with local and national service organizations and members of industry.

Fun and games for the children at every booth! Face Painting. Balloon Artist. Giveaways and more!

Eisai  – Sunovion – Supernus – LivaNova – UCB
Greenwich Biosciences – Epilepsy Association
Epilepsy Agency of the Big Bend – Epilepsy Florida
Orlando Epilepsy Center – BC Epilepsy – Brittany’s Blankets
Cambrooke (KETO Products) – Chelsea Hutchinson Foundation – CURE Epilepsy – Danny Did – HEADS UP 4 VETS
LGS Foundation – 4 Paws for Ability – Rare Patient Voices – TS Alliance 


REGISTRATION OPEN FOR OUR INFORMATION SESSIONS!


Along with informational booths at the EXPO, we are offering educational programs brought to you by informed, thoughtful industry members in the field of epilepsy.

SPACE IS LIMITED – REGISTER WITH

ANNMARIE@AKFUS.ORG
INCLUDE YOUR NAME
PROGRAM SELECTIONS
NUMBER IN YOUR PARTY


PROGRAM 1


LUNCH With an Expert: Learn About Focal (Partial-Onset) Seizures and a Treatment Option Taken Once a Day

Join us for lunch as Dr. Steven Wolf, Director of Pediatric Epilepsy at Boston Children’s Health Physicians of NY and CT, presents useful information on epilepsy, focal (partial-onset) seizures, and a prescription medicine taken once a day for patients 4 years of age and older. This is a promotional, non-Continuing Medical Education (CME) program sponsored by Sunovion Pharmaceuticals Inc.

WHEN– 12:15 pm – 1:30 pm
WHERE – Contemporary Ballrooms K-Q


 PROGRAM 2


Join Eisai for a 1-hour panel discussion that will cover three stages of life transition.

Seizure Freedom and the Family
When you have a family member living with epilepsy it can feel as if you are always waiting for the next seizure. Imagine if you could know what each transition could look like. This panel will share family experiences, talk through some of the challenges and considerations families confront at three different stages of life as they work towards seizure freedom.

The Early Years– Discussion led by a pediatric neurologist.
Navigating Change– Focusing on hormonal shifts and gaining independence.
Becoming Adults – Caregiver transition discussion led by parents and children with epilepsy.

When– 2 pm – 3 pm
Where– Contemporary Ballroom F


PROGRAM 3


Come learn about UCB’s commitment to Epilepsy. Learn about seizure clusters, rescue meds, and therapy options. UCB has a rich heritage in epilepsy with over 20 years of experience in the research and development of antiepileptic drugs. As a company with a long-term commitment to epilepsy research, our goal is to address unmet medical needs. Our scientists are proud to contribute to advances in the understanding of epilepsy and its treatment. We partner and create super-networks with world-leading scientists and clinicians in academic institutions, pharmaceutical companies, and other organizations that share our goals. At UCB, we are inspired by patients and driven by science in our commitment to support patients with epilepsy.

WHEN– 2:45 pm – 3:45 pm
WHERE– Contemporary Ballroom C


PROGRAM 4
(three sessions)


With CBD products popping up everywhere, this talk will discuss what distinguishes FDA approved CBD products from non-FDA approved products in their legality, content, and potential therapeutic effects.

Speaker Jordyn Stuart is a Medical Science Liaison with Greenwich Biosciences, the US subsidiary of GW Pharmaceuticals.

Prior to joining Greenwich Biosciences Jordyn completed her Ph.D. in Pharmacology at Macquarie University, in Sydney, Australia with a focus on evaluating the pharmacology of novel illicit synthetic cannabinoids. Her post-doctoral studies also included both preclinical and clinical projects investigating cannabinoids as therapeutics in epilepsy, Dravet Syndrome, and PTSD.

When – 2:00-2:45pm; 3:00-3:45pm, 4:00-4:45pm
Where – Contemporary Ballroom A


PROGRAM 5


Uncontrolled Seizures: An Option to Consider and Why

Still, having seizures despite medications? About 1 in 3 people with epilepsy have the type that is difficult to treat with medication. Come join the presentation with Dr. Ron Davis, Neurologist, and Founder of the Pediatric Neurology Epilepsy Center of Central Florida, to learn about drug-resistant epilepsy and VNS Therapy. Question and answer session following.

When: 2 pm – 2:45 pm & 3 pm – 3:45 pm
Where: Contemporary Ballroom E & F


 Dusk


The day will end with a visit to Epcot where we can all watch together as Spaceship Earth turns purple for epilepsy awareness.  Be there and enter to win a $250 prize!

For those who will not be spending time at Epcot, Disney guides will be at the Epcot gate and will escort you free of charge in and out of the park for the Spaceship Earth lighting so that you can be a part of this special photo opportunity.


  

Join us for this special opportunity to meet and greet and find a friend or two.

 

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